Wednesday, March 4, 2009

How time flies...

So I am so full of many emotions right now. First and foremost, one year ago tomorrow was the day I found out about precious Sophia's heart condition. It actually started the previous Monday. I went to see my doctor for my 20 week appointment. We brought Gabi with us because I was sure that we were having a boy and she was convinced we were having a baby sister. So we all went and the technition kept commenting on the it was hard to see the left side of the heart and the blood flow through that side of the heart. I didn't think anything of it because Sophia was laying on her left side and was making it INCREDIBLY difficult for the technition to do her job! I should have seen the signs then! So, I went to see my ob/gyn right after and he said there may have been something with the left side of her heart, but that they wanted me to see a perinatologist just to be sure. So three days later Jason and I nervously went to the perinatologist. I was feeling okay until the doctor came in with her nurse, she started rattling off...head size: normal, kidney's: normal, etc...then we got left ventrical:abnormal, aorta:abnormal...don't really remember much after that,except for the fact that I lost it. I then went to see the cardiologisy and we had to wait for what felt like forever! Unfortunately I didn't like what I heard from the cardiologist, in respect that she wasn't giving me concrete answers. So, the stubborn person in me...everyone who knows this about me, went back to work. Apparantly I think that going back to work to deal with other people's problems will help me forget about mine! Didn't work, as soon as I walked in and saw Sarah and Miriam...I again burst into tears. I did pretty okay after that, but again...I don't remember much else that happened that day.
So here we are one year later and of course this little angel is still keeping us on our toes. We went and saw Dr. Wellman today and Sophia is doing okay. Jason may have to come on and fix or update what I have written because 1) I had to leave early...I had court and 2) I still don't really understand everything he told me. So diong Sophia's echo's are incredibly difficult. To see the interrupted aortic arch she needs to be still so Dr. Wellman probe on her neck. Her appointment today took two and a half hours and it was because she was not a happy camper. Anyway, from my unerstanding Sophia's blood pressure in her arm and leg was the same, but the pressure in her heart is 45 higher. Because of this we have to have her stent reinflated. So all of you Washington heart mommies...we will be visiting sometime. We are just waiting to hear back from Dr. Wellman, who is calling Dr. Jones in Seattle to see when they want us down. Sophia seems to be doing well, but of course there is this setback. I will keep everyone updated once I know something, but please keep Baby Fia in your prayers.
On a happier Sophia note, she is doing well. She isn't crawling yet, but she can push herself on her arms and slide herself backwards. The picture I have is after she has pushed herself back and is under her swing. You can't really tell, but she is smiling!

2 comments:

Katie said...

Sophia's smile is so cute! She looks like a real go-getter :) We're going to be in Seattle for a cath with Dr. Jones on the 18th, just 2 weeks. Maybe by chance, we'll end up there at the same time and we can officially meet in person!?! I'm glad Sophia's doing well other than that.

Mimi said...

Oh- goodness!! Love that little face. I can't believe she is almost crawling!!! Sooo great! Keep me updated on when you are coming over- I would love to see you.

I am sorry you have to come back- yuck!!!