Cardiology Appointment

Today has been a very long day! Sophia had a cardiology appointment today and it took almost two hours! If there are any other heart mommies that read my blog and have suggestions on getting a good blood pressure read, I would love to know. It always takes us 6-7 tries to get her blood pressure, which is one of the most important things we need to get, but today it was almost impossible. We tried about 7-8 times before her echo and we just weren't getting ANY readings. We tried her on the bed and we even tried me holding her for a little while and that didn't even work. She was so upset and worked up that we decided we would wait until after her echo to try and get a read. She did okay for the echo, after Dr. Wellman put in Baby Einstein. Dr. Wellman wasn't happy with the readings he was getting from the echo and wanted to try and get her blood pressure. Of course it STILL didn't work, after 2 or 3 more tries we finally got her blood pressure and it was horrible. It was 130/91! Unfortunately we got this reading twice, so these are the numbers we kept. Dr. Wellman wasn't happy with this either, obviously, so he also did an EKG. With all of these it confirmed that her stent is not doing well. Dr. Wellman thinks it is almost time to go back to Seattle and get the stent replaced. He is sending the information to Seattle to have Dr. Jones look over it and see if we need to go down soon or if we can wait until our appointment scheduled with Dr. Wellman in March, yes MARCH. This makes me VERY nervous and I am sure I will be calling the wonderful ladies at the Alaska Children's Heart Center constantly attempting to get reassurance.
Other then the fact that this obviously isn't good news, Dr. Wellman said Sophia looks good.