Sophia had an appointment with Dr. Wellman today. She actually did REALLY well until her echo. She fought quite a bit, but we were able to get pictures. Her blood pressures were really high and Dr. Wellman has her on blood pressure medication to see if it will help and her pressure differences went up 17 points or whatever it is. 50's is when they need to go back in and fix the problem and she is at 39. It's so frustrating because she was at 22 three months ago when we got back from Seattle. I know as heart patients, our kids have ups and downs, but I just wish Sophia would get a break. She is such a little ray of sunshine and she deserves a break.
Ok, actually I feel a little better now. Since she is two and can't complain I feel it is my job to do it for her. I will update everyone as soon as we know something, but we don't get to see Dr. Wellman again until July.
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