Sunday, November 9, 2008
Discharge Date
Sophia is going to be discharged from the hospital tomorrow. We aren't leaving Seattle until Tuesday, to get cheaper tickets, but I am happy to be finally going home. (Although this weather is SO much better then what is happening in AK) This is sort of a catch 22 for me. Don't get me wrong, I am so excited to be leaving the hospital and going home, but on the other hand, my baby girl was very sick and I didn't know it. This has always been the fear for me with Sophia's heart condition. It's not a bruise or a injury on her skin. It's her heart. It's inside of her and I can't see it. I can't see when it is healthy and I can't see when it is sick. As a mother, this terrifies me. I know this baby girl. I know her personality, I know her smell, I know the way she feels in my arms; but I will never know when her heart is sick until it's really sick. How do I do that? How do I go through a day loving this baby and in the back of my mind wondering if she is sick or when she will be sick. I know that I have to put faith in God and I will continue to. He is the only person that can help her and He has protected her so well.
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2 comments:
You are so right...I second guess Maddie's "looks" every day. Wondering if something is going astray in there, it is so hard. Hard to trust and to let yourself be a "normal" and not to have those thoughts. The worry never ends. So happy for you that you're going home and that Sophia pulled through this so well. Isn't it amazing how much "heart" our little ones have? These babies are simply amazing to me and I'm strengthened each day by their fight. Congratulations!
Love,
Katie
Talia - I'm glad to see the pictures and find out that you are coming home. I pray for strength for both and Jason as you continue with this amazing journey God has given you... Sophia is a special gift and will have an amazing life to share.... I pray God gives you the disernment you desire to ALWAYS know exactly when Sophia needs you. You and Jason are going an amazing job with both your girls. He will provide all your needs - just trust in God.
Safe journey home. Know that we are praying for you all.
Yolanda
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