So I know I haven't posted anything in a while, but by the title of the blog, you can guys where we are. I will apologize in advance about any misspellings as I am going on little sleep and I am incredibly exhausted. So where I left you before, Sophia was having irregular heartbeats, but they have her on a medication for it and she is doing well. We moved from the binky training to feeding her from the bottle. She is such a superstar and has such a powerful suck that they have her on a preemie nipple right now. She is supposed to eat 50 mL of milk (with the fortified formula added) every three hours. Whatever she doesn't eat by mouth she has to have 
through her NG tube. The first day that we worked on this Sophia got about 10 mL's, then she progressed to 20 and yesterday she was able to eat 30. Today though she was able to get down all 50! Hopefully she can keep it up and she will be able to get off the NG tube very soon. So over the weekend we were told that we would probably be discharged from the hospital by Tuesday, but there was a few things that we needed to do and "master" before we left. Most importantly, we needed to learn how to put the NG tube in, in the event that it came out at some point. Well, Monday dragged on and the nurse was extremely busy and wasn't able to show us how to do it. By Tuesday I was pretty upset since I thought we would be able to leave and the only thing we needed to learn was h
ow to change the NG tube. Well, the doctors came in and told me that they were going to discharge Sophia on Wednesday and they wanted to know what time we wanted a flight of Seattle for that day. I was so shocked and I double checked that we weren't only being discharged from the hospital, but we were getting the green light to go home. The doctors all assured me that we could go home. I told that it wasn't possible for us to leave on Wednesday because we hadn't even packed, we were told we would have to stay a little while later after she was discharged. They agreed to let us stay at the Ronald McDonald House for one more day and they would look at getting us a flight on Thursday. I was getting pretty anxious because I couldn't believe that we may actually be leaving. (and honestly I didn't post on the blog because I didn't want to jinx myself) So I called my mom to let her know when we would be leaving and she said that she would come down the next day and help us come down. I repeatedly told her she didn't have to come on short notice, but she did anyway. Jason and I owe her big time because she has been such a huge help and support for us through this entire experience. So, mom flew down Wednesday morning and Jason and Gabi went to pick her up. I was told that we would be able to discharge from the hospita
l sometime between 11 and 23. The still needed to give us all of Sophia's medication and we were waiting for a couple of letters from the social worker. (She wrote a letter that eventually waived the fee for extra checked baggage and the waive the weight requirement...which proved great for us since we later learned that I had 64 pounds of breastmilk in a cooler.)12 came and went and I strolled down to our buddies room(Sophia came to the hospital with another baby born on 7/8 and we have been checking on each other ever since) and they were getting ready to leave. This made me extra grumpy and I was ready to go. They eventually got is out of the hospital at 3 and we were FREE. We took the girls to the zoo for a little while because Gabi really wanted to show her sister the gorillas. We first went to the Ronald McDonald House to do some packing and get things situated. On the way to the zoo, mom noticed some cameras filming and Jason thought he saw Robin Williams...it was Robin Williams, didn't get a good picure, but hey...we saw Robin Williams. So we went to the zoo then packed and waited for Thursday to come. Our flight left Seattle at 11:30 this morning and we returned home a little before 3. We are so happy to be home that words cannot explain it. This has been a long and trying journey for myself and Jason, but we have managed to get through it stronger than ever. We know we will always have to see a cardiologist and deal with Sophia's heart, but if we can make it through this, we can make it through anything.
through her NG tube. The first day that we worked on this Sophia got about 10 mL's, then she progressed to 20 and yesterday she was able to eat 30. Today though she was able to get down all 50! Hopefully she can keep it up and she will be able to get off the NG tube very soon. So over the weekend we were told that we would probably be discharged from the hospital by Tuesday, but there was a few things that we needed to do and "master" before we left. Most importantly, we needed to learn how to put the NG tube in, in the event that it came out at some point. Well, Monday dragged on and the nurse was extremely busy and wasn't able to show us how to do it. By Tuesday I was pretty upset since I thought we would be able to leave and the only thing we needed to learn was h
ow to change the NG tube. Well, the doctors came in and told me that they were going to discharge Sophia on Wednesday and they wanted to know what time we wanted a flight of Seattle for that day. I was so shocked and I double checked that we weren't only being discharged from the hospital, but we were getting the green light to go home. The doctors all assured me that we could go home. I told that it wasn't possible for us to leave on Wednesday because we hadn't even packed, we were told we would have to stay a little while later after she was discharged. They agreed to let us stay at the Ronald McDonald House for one more day and they would look at getting us a flight on Thursday. I was getting pretty anxious because I couldn't believe that we may actually be leaving. (and honestly I didn't post on the blog because I didn't want to jinx myself) So I called my mom to let her know when we would be leaving and she said that she would come down the next day and help us come down. I repeatedly told her she didn't have to come on short notice, but she did anyway. Jason and I owe her big time because she has been such a huge help and support for us through this entire experience. So, mom flew down Wednesday morning and Jason and Gabi went to pick her up. I was told that we would be able to discharge from the hospita
l sometime between 11 and 23. The still needed to give us all of Sophia's medication and we were waiting for a couple of letters from the social worker. (She wrote a letter that eventually waived the fee for extra checked baggage and the waive the weight requirement...which proved great for us since we later learned that I had 64 pounds of breastmilk in a cooler.)12 came and went and I strolled down to our buddies room(Sophia came to the hospital with another baby born on 7/8 and we have been checking on each other ever since) and they were getting ready to leave. This made me extra grumpy and I was ready to go. They eventually got is out of the hospital at 3 and we were FREE. We took the girls to the zoo for a little while because Gabi really wanted to show her sister the gorillas. We first went to the Ronald McDonald House to do some packing and get things situated. On the way to the zoo, mom noticed some cameras filming and Jason thought he saw Robin Williams...it was Robin Williams, didn't get a good picure, but hey...we saw Robin Williams. So we went to the zoo then packed and waited for Thursday to come. Our flight left Seattle at 11:30 this morning and we returned home a little before 3. We are so happy to be home that words cannot explain it. This has been a long and trying journey for myself and Jason, but we have managed to get through it stronger than ever. We know we will always have to see a cardiologist and deal with Sophia's heart, but if we can make it through this, we can make it through anything.
2 comments:
Yay!!!! I am so so happy she is home! I love that you went to the zoo... how normal did that feel?? So great!
Well we were home, now we are back. Mia is struggling a little... poor kiddo. Now that I am back- I will miss not seeing you guys, but I do not wish you were back here ;-) So happy you are back home!!!
oh- that comment is Mimi by the way- I am signed in as him- oops!
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